Pulmonary Fibrosis Trust

The Pulmonary Fibrosis Trust is a UK-wide charity founded by patients with lived experience of pulmonary fibrosis, a progressive lung condition, to provide personal, practical, and emotional support to sufferers, families, and carers. Established to address gaps in information and support at diagnosis, its mission ensures no one faces the disease alone, guided by values of empathy, dignity, empowerment, and community. Distinctively patient-led—with trustees and volunteers often personally affected—it emphasizes peer support, independence, and quality-of-life improvements through pragmatic aid.

The Trust funds essential equipment like portable oxygen concentrator batteries, wheelchairs, mobility scooters, and stairlifts to maintain mobility and autonomy; short respite breaks via a dedicated holiday caravan; and occasional group activities for awareness or support. It prioritizes raising public and primary care awareness through campaigns, conferences, and UK Lung Health Taskforce involvement, while supporting research on practical interventions such as pulmonary rehabilitation and vital sign monitoring tech. Grants target direct individual needs, not organisational core costs.

Eligible applicants are UK residents (England, Scotland, Wales, Northern Ireland) with confirmed pulmonary fibrosis diagnoses, including individuals, carers, or community groups focused on mobility, independence, or well-being. It accepts unsolicited applications from any income level via a downloadable form from its website (requestable by email/post), requiring consultant's letter evidence; submissions by email or post are reviewed on a rolling basis by trustees, with decisions typically in weeks. Awards range from several hundred to several thousand pounds based on need.

Unlike broader funders, it excludes grants to charities/organisations, unrestricted funding, or non-pulmonary fibrosis causes, standing out for its responsive, anecdote-driven impact and no-trustee remuneration model reliant on donations.